The Max Cure Foundation Blog

Childhood Cancer, Noah’s Ark and My Daughter

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Max Cure’s Executive Director Jonathan Agin is featured in Real Clear Health. “As the Executive Director of the Max Cure Foundation, I am no longer fighting for my daughter and her life.  What I am doing—and what so many of us in the childhood cancer community are doing—is fighting for the lives of all of children suffering.” (more…)

pedODAC Meeting – DIPG

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Jonathan Agin, JD, Executive Director’s Public Comments before the Pediatric Subcommittee of the Oncologic Drugs Advisory Committee (pedODAC) Meeting.


pedODAC with namesOn June 29, 2016, I was one of five individuals selected to present public comments at the Federal Drug Administration (FDA) pedODAC meeting in a special session dedicated to the pediatric brain tumor that took my daughter’s life,  (DIPG).   (more…)

Youth Football Turns Into Fundraising for Childhood Cancer

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Youth Football Raises Money for Childhood Cancer

On May 21st and 22nd, 2016, The Max Cure Foundation and Casa Grande Union High School joined forces to host the first Cactus Classic Charity Football Tournament.

Thanks to the support of 19 Arizona youth football teams and their families, the tournament raised over $11,000 for the Arizona Roar Beyond Barriers program which provides financial support to four families in need who have a child battling cancer as well as the high school’s athletic program. (more…)

The Cancer Moonshot: Are Our Kids Stepping on the Moon Too?

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kennedy moonshotOn September 12, 1962 President Kennedy delivered his famous “moonshot” speech. Declaring that as a nation, we would focus vast resources to landing a man on the moon and safely bringing that man back to earth.  (more…)

Words of Appreciation

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The Max Cure Foundation was formed after the diagnosis of Max, at age 4 with cancer (Max is currently 12 years old, a 9 year childhood cancer survivor). Max Cure Foundation initiated a fundraiser for the family of the active duty U.S. Navy SEAL whose 4 year old daughter was diagnosed with cancer in August, 2015.  (more…)

Expanded Access Programs 2016

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From left to right:  Ken Moch (former CEO, Chimerix); Richard Plotkin (Max Cure), Debra Birnkrant (FDA), Brooke Gladstone (NPR, Moderator), Nancy Goodman (KidsvCancer), Meg Tirrell  (CNBC)

On October 28, 2015, Richard Plotkin appeared as a panelist at a two-day colloquium at New York Academy of Science sponsored by NYU School of Medicine, NYU Langone Medical Center, and Johnson & Johnson.  The subject of the program is identified as, “Pre-Approval Access: Can Compassion, Business, and Medicine Coexist?”   (more…)

Max Cure Foundation’s 2015 Annual Appeal

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You are brought into a small room: a doctor, a nurse, a social worker and you. The look on their faces is dire. You can feel the fear building; it is palpable. And then you hear the words I’m sorry, “your child has cancer.” This scenario repeats itself 43 times each day in the United States. In April 2008, my family heard those words about our 2-year-old daughter Alexis. Alexis fought against inoperable and terminal brain cancer for 33 months before passing away in January 2011. Similarly, in May 2007, David and Annemarie Plotkin heard these words about 4-year-old Max. Max now stands as a “poster child” for giving other families hope. (more…)

Progress in Action

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Progress in Action: Max Cure Foundation’s Contributions to the Immune Cell Laboratory at Memorial Sloan-Kettering Cancer Center

As the first Executive Director of the Max Cure Foundation, I set several lofty goals that will take significant time and effort to bring to fruition. In viewing the combined three-pronged mission of MCF, one of my biggest desires was to ensure that the funding MCF has provided to the Immune Cell Laboratory at Memorial Sloan Kettering Cancer Center was indeed money well spent.  (more…)

Jonathan’s First Letter as Executive Director

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On September 1, 2015 I began a new journey in my life. September 1, 2015 marks my first official day as the first Executive Director for the Max Cure Foundation. It is no small coincidence that on the same day, Childhood Cancer Awareness Month began.  (more…)

Ties For a Cure

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Who knew the old adage, “The apple doesn’t fall far from the tree” would relate to fundraising and the Max Cure Foundation???  In this case, the apple is the very talented daughter of one of our board members……

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For Finn With Love – A Roar Beyond Barriers Story

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Tamlyn and Colm were already parents of a beautiful little girl named Eve who was five-years-old when she learned she was going to be a big sister. Tamlyn’s pregnancy was normal, and on March 1, 2014 she gave birth to a beautiful, happy little boy named Finn.  (more…)

Kevin Healy Joins the Max Cure Team

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Meet Kevin Healy – Newest MCF Team Member

The Max Cure Foundation is excited to introduce our newest Program Coordinator, Kevin Healy. He joined the foundation on July 6th and has shown tremendous passion for the cause and we have no doubt that he will be a very valuable asset in the fight against childhood cancer.  (more…)

Beyond Josh Hardy

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On July 22nd and July 23rd 2015, CBI.net held an industry conference in Bethesda, Maryland, identified as “Expanded Access Programs.” In attendance were representatives from the pharmaceutical and biotech industries, health care providers, patient advocates, government personnel [FDA], and Max Cure Foundation’s, Vice Chairman, Richard Plotkin.

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Jonathan Agin Becomes MCF First Executive Director

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The Max Cure Foundation is honored to announce that leading pediatric cancer advocate, Jonathan Eric Agin, JD, has accepted the position of Executive Director as of September 1, 2015. (more…)

President Obama Finally Appoints a Pediatric Oncologist to the National Cancer Advisory Board

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For some time, childhood cancer advocates have been seeking the appointment of a pediatric oncologist to the National Cancer Advisory Board (“NCAB”).  (more…)

Girl Scout Troop Raise $1,050 for Arizona Families

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Over the past year, The Max Cure Foundation has had the honor of working very closely with The Girl Scouts of Southern Arizona, Troop 26 on their Take Action program.  (more…)

Creating Hope

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New Treatments & Better Drugs for Childhood Cancer

In July, 2012, President Obama signed into law the Creating Hope Act for the purpose of incentivizing pharmaceutical companies, biotech firms and universities in seeking cures for what are known as Rare Children’s Diseases.  Childhood Cancer is considered such a Rare Children’s Disease.   (more…)